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The NIH CDE Repository hosts 22743 CDEs from 19 Collections. We provide access to structured human and machine-readable definitions of data elements that have been recommended or required by NIH Institutes and Centers and other organizations for use in research and for other purposes.

Collections

Project 5 (COVID-19)

For translational, clinical, and applied COVID-19 research

125 elements

SBE CCC

Social, Behavioral, & Economic COVID Coordinating Center

13 elements

Source

ScHARe

Science Collaborative for Health disparities and Artificial intelligence bias REduction

28 elements

Source

AHRQ

Agency for Healthcare Research and Quality

91 elements

cLBP

Chronic Low Back Pain

4 elements

Source

External Forms

External Forms

204 elements

GRDR

Global Rare Diseases Patient Registry Data Repository

75 elements

Source

NEI

National Eye Institute

235 elements

NHLBI

National Heart, Lung and Blood Institute

2780 elements

Cure Sickle Cell Initiative

Source

NICHD

Eunice Kennedy Shriver National Institute of Child Health and Human Development

638 elements

Source

NIDA

National Institute on Drug Abuse

120 elements

Source

NINDS

National Institute of Neurological Disorders and Stroke

13558 elements

Source

NINR

National Institute of Nursing Research

191 elements

Source

NLM

National Library of Medicine

302 elements

ONC

Office of the National Coordinator

35 elements

PhenX

Consensus measures for Phenotypes and eXposures

3635 elements

Source

PROMIS / Neuro-QOL

Patient Reported Outcomes Measurement Information System

647 elements

Source

RADx-UP

Rapid Acceleration of Diagnostics (RADx) Underserved Populations

234 elements

Source

Women's CRN

Women's Health Technology Coordinated Registry Network

21 elements

Source