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  • In the past 7 days, how often were you terrified that you might have a pain attack (crisis)?
  • In the past 7 days, how bad was the pain you usually have?
  • In the past 7 days, how bad was the pain in your joints (such as hips or shoulders)?
  • In the past 7 days, how bad was the pain in your chest or stomach?
  • In the past 7 days, how many days did pain prevent you from doing anything?
  • In the past 7 days, how often did you get enough sleep?
  • In the past 7 days, how often did you get as much sleep as you wanted?
  • In the past 7 days, how often did you struggle to stay awake during the day?
  • In the past 7 days, how often did you fall asleep when you wanted to stay awake?
  • In the past 7 days, how much trouble did you have falling asleep?
  • In the past 7 days, if you woke up in the middle of the night, how often did you stay awake most of the rest of the night?
  • In the past 7 days, if you woke up in the middle of the night, how much trouble did you have falling back to sleep?
  • Is your child of Hispanic or Latino origin or descent?
  • Has the patient experienced a neurological event resulting in focal neurologic deficits that lasted >= 24 hours?
  • Date of most recent neurological event resulting in focal neurologic deficits lasting >= 24 hours
  • Has the patient experienced a focal neurological event resulting in abnormalities on T2-weighted or FLAIR images using an MRI scan, indicative of an acute infarct, with no other reasonable medical explanation?
  • Date of most recent focal neurological event resulting in abnormalities on T2-weighted or FLAIR images using an MRI scan
  • Was there clinical or radiologic evidence of a recent cerebral infarct by cerebral MRI/MRA within 30 days prior to enrollment?
  • Was the patient previously deferred for >= 6 months due to clinical or radiologic evidence of a recent cerebral infarct by cerebral MRI/MRA within 30 days prior to enrollment?
  • Record the date of the cerebral MRI/MRA with evidence of a cerebral infarct
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