• Birth head circumference units
• Body height Measured --at birth
• Birth length units
• Birth Weight
• Birth weight units
• Type of neonatal nutrition
• If other, please specify
• Mode of nutrition delivery
• Age at specimen collection
• Number of newborn screen results available
• First newborn screen take in neonatal intensive care (NICU)
• Days of age from birth when primary or subspecialist first notified about abnormal NBS screen
• Reason for first newborn screen
• State NBS serial number on first newborn screen
• Birth hospital ID
• Factors that can affect NBS results
• CLIR results:
• CK-MM activity result normal reference range on first newborn screen
• CK-MM activity tissue type on first newborn screen
• If other, please specify