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  • CDEs
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  • State mother resides in at patient's birth
  • Medical coverage at time of intake
  • Primary language spoken at home
  • Number of biological siblings in the patient's family
  • Sibling 1: Sibling type
  • Sibling 1: Half
  • Sibling 1: Affected with this condition
  • Sibling 1: Enrolled in this study
  • Sibling 1: NBSTRN ID for this study
  • Sibling 1: Method of diagnosis
  • Sibling 1: Method of diagnosis-other, specify
  • Sibling 1: Newborn screen performed for this condition
  • Sibling 1: Results of newborn screening for this condition
  • Sibling 1: Diagnostic tests performed for this condition
  • Sibling 1: Specify the type of diagnostic tests performed
  • Sibling 1: Diagnostic tests performed-other, specify
  • Sibling 1: Deceased
  • Biological mother: Evidence of maternal symptoms
  • Specify evidence of maternal symptoms
  • Other affected family members NOT listed above
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