• 5. How helpful was the information when deciding to have your baby screened?
• 6. Did anyone talk to you about the information for screening?
• 7. Who talked to you the most about the information for screening?
• If other, please specify
• 8. How helpful was this person in explaining screening for Duchenne?
• 9. Did this person give you enough time to ask questions about Duchenne screening?
• Information source
• If other, please specify
• Further testing was done after the first Duchenne screening test came back as 'abnormal' or 'inconclusive'.
• 11. Did your baby need to have further testing for Duchenne?
• 12. Who did you talk with the most about further testing for Duchenne?
• If other, please specify
• 13. Did you feel you were given enough time to ask questions about further testing for Duchenne?
• 14. How well did you understand why further testing was done?
• 15. Which choice best describes your overall experience with the Duchenne screening program.
• Please explain:
• 16. How can Duchenne screening be improved?
• 17. Other comments:
• 18. What is today's date?
• 21. Did your baby spend any time in the neonatal intensive care unit (NICU)?