| Value | Code Name | Code | Code System | Code Description |
|---|---|---|---|---|
| 0 | No | |||
| 1 | I don't know | |||
| 2 | Yes - MDA Physician-Report Registry | |||
| 3 | Yes - Cooperative International Neuromuscular Research Group (CINRG) | |||
| 4 | Yes - United Dystrophinopathy (UDP) Patient Registry (Dr. Kevin Flanigan) | |||
| 5 | Yes - Non-US (International) TREAT-NMD Neuromuscular Network Registry | |||
| 6 | Yes - Other |