NIH Common Data Elements (CDE) Repository

General Details:

Name:: Problem Behaviours Assessment - Short Form (PBA-S) - anxiety worst score
Steward:: NINDS
Definition:: The worst score for anxiety since patient was last seen as part of the Problem Behaviours Assessment - Short Form (PBA-S).
Registration Status:: Qualified

Value	Code Name	Code Description
0	Absent	Absent
1	Questionable, vague unease (also rate 1 if subject's only worry or anxiety is about prognosis of HD)	Questionable, vague unease (also rate 1 if subject's only worry or anxiety is about prognosis of HD)
2	Subject experiences intermittent worry or anxiety, but symptom is not severe enough to cause significant distress or interfere with everyday activities	Subject experiences intermittent worry or anxiety, but symptom is not severe enough to cause significant distress or interfere with everyday activities
3	Unpleasant anxiety is present much of the time, and has a significant impact on subject's behavior (e.g. avoids going to places or events associated with provoking anxiety)	Unpleasant anxiety is present much of the time, and has a significant impact on subject's behavior (e.g. avoids going to places or events associated with provoking anxiety)
4	Worry, anxiety or panic are present all the time and have a major impact on subject's lifestyle (e.g. agoraphobia such that subject cannot leave home without an escort)	Worry, anxiety or panic are present all the time and have a major impact on subject's lifestyle (e.g. agoraphobia such that subject cannot leave home without an escort)
8	Unable to assess because condition too advanced (e.g. mute and immobile)	Unable to assess because condition too advanced (e.g. mute and immobile)

Designation:: Problem Behaviours Assessment - Short Form (PBA-S) - anxiety worst score
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Definition:: The worst score for anxiety since patient was last seen as part of the Problem Behaviours Assessment - Short Form (PBA-S).
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Document:: © COPYRIGHT University of Ulm, Faculty of Medicine, EHDN Behavioural Phenotype Working Group (Version 1.4, February 2007). For enquiries, contact permissions@euro-hd.net A paper describing the reliability of the PBA-s (in English, Dutch and French) based on data from the TRACK-HD study is in preparation and will be submitted shortly. Craufurd D, Thompson J, Snowden JS. Behavioural changes in Huntington's disease: the Problem Behaviours Assessment. Neuropsychiatry, Neuropsychology and Behavioural Neurology 2001; 14 (4): 219-226.