This is not asked of registry participants, but generated by the source registry. A unique patient identifier within the GRDR only will be synthesized from identifiers the source registry provides.
Registration Status:
Qualified
Permissible Values:
Data Type:
Externally Defined
Unit of Measure:
Ids:
Value
Code Name
Code
Code System
Code Description
Designations:
Designation:
Registry Unique Participant ID
Tags:
Question
Designation:
n/a
Tags:
Health
Designations:
Definition:
This is not asked of registry participants, but generated by the source registry. A unique patient identifier within the GRDR only will be synthesized from identifiers the source registry provides.
Tags:
Question
Definition:
There are two response category options for this variable: the GRDR GUID or the registry's own identifier. The ideal is that this item will contain the participant's GRDR GUID to assign an identifier that is unique across registries and other repositories. However, if the source registry is unable to assign the GRDR GUID, it may substitute its own identifier, which must uniquely identify this person in the registry, and may not contain any information that could be used to otherwise identify the patient (e.g. name, medical ID numbers, social security number).