Registries may wish to add "Other" with free text to capture additional data. Responses to these free text items will not be uploaded to the GRDR repository.
Registration Status:
Qualified
Permissible Values:
Data Type:
Externally Defined
Unit of Measure:
Ids:
Value
Code Name
Code
Code System
Code Description
Designations:
Designation:
Rare Disease Diagnosis
Tags:
Question
Designation:
What is the participant’s rare disease diagnosis?
Tags:
Health
Designations:
Definition:
Registries may wish to add "Other" with free text to capture additional data. Responses to these free text items will not be uploaded to the GRDR repository.
Tags:
Question
Definition:
Each registry pre-defines a set of diagnosis responses that are presented in the survey.