1. What was/were the most important reason(s) you decided to have your baby screened for Duchenne?

General Details:

Name:
1. What was/were the most important reason(s) you decided to have your baby screened for Duchenne?
Steward:
NICHD
Registration Status:
Qualified

Permissible Values:

Data Type:
Value List
Unit of Measure:
Ids:
Value Code Name Code Code System Code Description
0 I just wanted to know if my baby had Duchenne.
1 I wanted to support research.
2 I know a family who has a child with Duchenne.
3 I wanted to rule it out to have one less thing to worry about.
4 If my baby had Duchenne, I wanted to be able to mentally prepared.
5 If my baby had Duchenne, I wanted to be informed of treatment opportunities for my baby as early as possible.
6 If my baby had Duchenne, I wanted the information to plan for future pregnancies.
7 Other reason(s)

Designations:

Designation:
1. What was/were the most important reason(s) you decided to have your baby screened for Duchenne?
Tags:
NICHD

Identifiers:

Source:
NLM
Id:
whYL9gzDRY
Version:
Source:
NICHD Variable Name
Id:
ps_rbws
Version: