Race

General Details:

Name:
Race
Steward:
PhenX
Definition:
Question asking the respondent his or her race. U.S. Office of Management and Budget (OMB) standards for the classification of federal data on race and ethnicity state that "race and ethnicity may be thought of in terms of social and cultural characteristics as well as ancestry."
Registration Status:
Retired

Designations:

Designation:
Race
Tags:

Designations:

Definition:
Question asking the respondent his or her race. U.S. Office of Management and Budget (OMB) standards for the classification of federal data on race and ethnicity state that "race and ethnicity may be thought of in terms of social and cultural characteristics as well as ancestry."
Tags:
Definition:
The interviewer asks the respondent what race he or she considers himself or herself to be and hands the respondent a card with a list of race categories. The respondent is asked to pick one or more of the categories on the card. The interviewer enters the code for the race indicated or keys in an entry if the respondent chooses an "other (specify)" option.
Tags:

Reference Documents:

ID:
Title:
URI:
Provider Org:
Language Code:
en-us
Document:
Centers for Disease Control and Prevention (CDC), Office of Minority Health and Health Disparities (OMHD). (2008). Native Hawaiian & Other Pacific Islander (NHOPI) Populations.
ID:
Title:
URI:
Provider Org:
Language Code:
en-us
Document:
Centers for Disease Control and Prevention. (2000). Race and Ethnicity Code Set, Version 1.0. Atlanta: Author. http://www.cdc.gov/phin/resources/vocabulary/documents/cdc-race--ethnicity-background-and-purpose.pdf
ID:
Title:
URI:
Provider Org:
Language Code:
en-us
Document:
Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity. 62 Fed. Reg. (October 30, 1997).

Properties:

Key:
Derived Variables
Value:
Native Hawaiian and Other Pacific Islanders (NHOPIs): Office of Management and Budget (OMB) guidelines combine the two racial categories to provide broader classifications. The U.S. Census and the Centers for Disease Control and Prevention (CDC) also use NHOPI as a race category.
Key:
Equipment Needs
Value:
While the source instrument was developed to be administered by computer, the PhenX Working Group acknowledges these questions can be administered in a noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.
Key:
Keywords
Value:
Demographics, ancestry, ethnicity, population stratification, National Health and Nutrition Examination Survey, NHANES, National Center for Health Statistics, NCHS, Centers for Disease Control and Prevention, CDC
Key:
Language
Value:
English, Spanish
Key:
Life Stage
Value:
Infant, Toddler, Child, Adolescent, Adult, Senior, Pregnancy
Key:
Mode Of Administration
Value:
Interviewer-administered questionnaire
Key:
Participants
Value:
Any age. May be asked of children via a proxy.
Key:
Personnel And Training Required
Value:
The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.* There are multiple modes to administer these questions (e.g., paper-and-pencil and computer-assisted interviews).
Key:
Process And Review
Value:
The Expert Review Panel #2 (ERP 2) reviewed the measures in the Demographics, Social Environments and Environmental Exposures domains.Guidance from ERP 2 includes:• Updated protocol• New Data DictionaryBack-compatible: there are changes to the Data Dictionary, previous version of the Data Dictionary and Variable mapping in Toolkit archive (link)
Key:
Protocol
Value:
1. What race or races do you consider yourself to be? Please select one or more. HAND CARD 1 CHECK ALL THAT APPLY. 1[ ]AMERICAN INDIAN OR ALASKA NATIVE 2[ ]ASIAN [GO TO Q2] 3[ ]BLACK OR AFRICAN AMERICAN 4[ ]NATIVE HAWAIIAN OR PACIFIC ISLANDER [GO TO Q3] 5[ ]WHITE 6[ ]OTHER 99[ ]DON’T KNOW 77[ ]REFUSED 2. Please give me the number of the group that represents your Asian origin or ancestry. Please select one or more of these categories. HAND CARD 2 PROBE: Where do your ancestors come from? 10[ ]ASIAN INDIAN 11[ ]BANGLADESHI 12[ ]BENGALESE 13[ ]BHARAT 14[ ]BHUTANESE 15[ ]BURMESE 16[ ]CAMBODIAN 17[ ]CANTONESE 18[ ]CHINESE 19[ ]DRAVIDIAN 20[ ]EAST INDIAN 21[ ]FILIPINO 22[ ]GOANESE 23[ ]HMONG 24[ ]INDOCHINESE 25[ ]INDONESIAN 26[ ]IWO JIMAN 27[ ]JAPANESE 28[ ]KOREAN 29[ ]LAOHMONG 30[ ]LAOTIAN 31[ ]MADAGASCAR/MALAGASY 32[ ]MALAYSIAN 33[ ]MALDIVIAN 34[ ]MONG 35[ ]NEPALESE 36[ ]NIPPONESE 37[ ]OKINAWAN 38[ ]PAKISTANI 39[ ]SIAMESE 40[ ]SINGAPOREAN 41[ ]SRI LANKAN 42[ ]TAIWANESE 43[ ]THAI 44[ ]VIETNAMESE 77[ ]REFUSED 99[ ]DON’T KNOW 3. Please give me the number of the group that represents your Native Hawaiian or Pacific Islander origin or ancestry. Please select one or more of these categories. HAND CARD 3 PROBE: Where do your ancestors come from? 1[ ]NATIVE HAWAIIAN 2[ ]GUAMANIAN OR CHAMORRO 3[ ]SAMOAN 4[ ]OTHER PACIFIC ISLANDER 7[ ]REFUSED 9[ ]DON’T KNOW 4. CODE ANSWER TO “OTHER RACE.” 10[ ]MEXICAN 11[ ]PUERTO RICAN 12[ ]CUBAN 13[ ]DOMINICAN REPUBLIC CENTRAL AMERICAN: 14[ ]COSTA RICAN 15[ ]GUATEMALAN 16[ ]HONDURAN 17[ ]NICARAGUAN 18[ ]PANAMANIAN 19[ ]SALVADORAN 20[ ]OTHER CENTRAL AMERICAN SOUTH AMERICAN: 21[ ]ARGENTINEAN 22[ ]BOLIVIAN 23[ ]CHILEAN 24[ ]COLOMBIAN 25[ ]ECUADORIAN 26[ ]PARAGUAYAN 27[ ]PERUVIAN 28[ ]URUGUAYAN 29[ ]VENEZUELAN 30[ ]OTHER SOUTH AMERICAN OTHER HISPANIC OR LATINO: 31[ ]FILIPINO 32[ ]SPANIARD 33[ ]SPANISH 34[ ]SPANISH AMERICAN 35[ ]HISPANO/HISPANA 36[ ]HISPANIC/LATINO 40[ ]OTHER HISPANIC/LATINO (SPECIFY) 41[ ]CHICANA/CHICANO REFUSED DON’T KNOW
Key:
Protocol Name From Source
Value:
National Health and Nutrition Examination Survey (NHANES), 2013-2014, Demographics Module.
Key:
Purpose
Value:
Race is used to stratify study populations and to associate those populations with physical, geographic, biological, social, and cultural characteristics (e.g., African Americans). Race is a social and epidemiological factor, and individuals of some races are at greater risk for certain diseases.
Key:
Requirements
Value:
Requirement CategoryRequired
Major equipmentNo
Specialized trainingNo
Specialized requirements for biospecimen collectionNo
Average time of greater than 15 minutes in an unaffected individualNo
Key:
Selection Rationale
Value:
The questions meet the Office of Management and Budget (OMB) standards for capturing data on race. An important tabulation variable, it captures those who self-identify as belonging to more than one race. Several questions were considered, and the National Health and Nutrition Examination Survey (NHANES) question was selected because it meets OMB standards, was used on a major U.S. health study, and provides multiple racial response categories.
Key:
Source
Value:
National Center for Health Statistics. National Health and Nutrition Examination Survey (NHANES), Demographics Module 2013–2014. Question numbers DMQ.263, DMQ.336, DMQ.350, DMQ.266.
Key:
Standards
Value:
SourceIDNameStandard
CDE Browser2200286Centers for Disease Control and Prevention Race Unique Identifier CodeCommon Data Elements (CDE)
LOINC56091-2Race PhenXLogical Observation Identifiers Names and Codes (LOINC)

Identifiers:

Source:
NLM
Id:
71WP_O3c4X
Version:
1.1
Source:
PhenX
Id:
10602
Version:
Source:
LOINC
Id:
56091-2
Version:
2.67
Source:
NINDS
Id:
F2859
Version: