PhenX - social networks protocol 211101

General Details:

Name:
PhenX - social networks protocol 211101
Steward:
PhenX
Definition:
The Important and Health Matters Social Network Battery is an interviewer-administered survey that captures the names of all individuals within a respondent's social network and the relationship between these individuals. The high-burden protocol is a semi-structured interview that has both open-ended and close-ended questions. On average, it takes 15-20 minutes to complete because individuals usually provide 4-7 names. Note that this measure yields potentially identifiable data about the participant(s). The investigator should refer to Health Insurance Portability and Accountability Act (HIPAA) rules regarding potentially identifiable data, which will provide guidance on who may access the data and how they may do so. Given HIPAA concerns, researchers should consider what level of identification is needed on network ties. In one-time data collections, interviewers can use first names or initials. However, in panel studies, these approaches run into trouble because respondents tend not to remember the nicknames, initials, and pseudonyms they gave in earlier waves. It is essential that the interviewer ask for all names and list them on the interview form (or suggested separate Network Recording Form) before asking and coding items 2-11 on the form.
Registration Status:
Qualified

Designations:

Designation:
PhenX - social networks protocol 211101
Tags:
Long Common Name
Designation:
Social networks proto
Tags:
Short Name

Designations:

Definition:
The Important and Health Matters Social Network Battery is an interviewer-administered survey that captures the names of all individuals within a respondent's social network and the relationship between these individuals. The high-burden protocol is a semi-structured interview that has both open-ended and close-ended questions. On average, it takes 15-20 minutes to complete because individuals usually provide 4-7 names. Note that this measure yields potentially identifiable data about the participant(s). The investigator should refer to Health Insurance Portability and Accountability Act (HIPAA) rules regarding potentially identifiable data, which will provide guidance on who may access the data and how they may do so. Given HIPAA concerns, researchers should consider what level of identification is needed on network ties. In one-time data collections, interviewers can use first names or initials. However, in panel studies, these approaches run into trouble because respondents tend not to remember the nicknames, initials, and pseudonyms they gave in earlier waves. It is essential that the interviewer ask for all names and list them on the interview form (or suggested separate Network Recording Form) before asking and coding items 2-11 on the form.
Tags:
Source: Regenstrief LOINC

Reference Documents:

ID:
Title:
URI:
Provider Org:
Language Code:
en-US
Document:
U.S. Department of Health and Human Services, National Institutes of Health, National Institute for Mental Health, Institute for Social Research, & Indiana University. The Indianapolis Network Mental Health Study (INMHS), 1990–1991.
ID:
Title:
URI:
Provider Org:
Language Code:
en-US
Document:
Perry, B. L., & Pescosolido, B. A. (2010). Functional specificity in discussion networks: The influence of general and problem-specific networks on health outcomes. Social Networks, 32(4), 345–357.
ID:
Title:
URI:
Provider Org:
Language Code:
en-US
Document:
Pescosolido, B. A., Brooks-Gardner, C., & Lubell, K.M. (1998). How people get into mental health services: Stories of choice, coercion and "muddling through" from "first-timers." Social Science and Medicine, 46(2), 275–286.
ID:
Title:
URI:
Provider Org:
Language Code:
en-US
Document:
Pescosolido, B., & Wright, E. (2004). The view from two worlds: The convergence of social network reports between mental health clients and their ties. Social Science and Medicine, 58, 1795–1806.
ID:
Title:
URI:
Provider Org:
Language Code:
en-US
Document:
Pescosolido, B. A., Wright, E. R., Alegr¿ M., & Vera, M. (1998). Social networks and patterns of use among the poor with mental health problems in Puerto Rico. Medical Care, 36(7), 1057–1072.
ID:
Title:
URI:
Provider Org:
Language Code:
en-US
Document:
Stein, C. H., Rappaport, J., & Seidman, E. (1995). Assessing the social networks of people with psychiatric disability from multiple perspectives. Community Mental Health Journal, 31, 351–367.
ID:
Title:
URI:
Provider Org:
Language Code:
en-US
Document:
Wright, E. R., & Pescosolido, B. A. (2002). "Sorry, I forgot": The role of recall error in longitudinal, personal networks studies. Social Networks and Health, 8, 113–129.

Properties:

Key:
Related Names
Value:
PanPanelPANEL.PHENX
PanlPnlPoint in time
Random
Key:
Related Codes
Value:
Code SystemCodeCode TextCode Version
https://www.phenxtoolkit.org211101social_networks
Key:
Fully-Specified Name
Value:
ComponentPropertyTimeSystemScaleMethod
PhenX - social networks protocol 211101-Pt^Patient-PhenX
Key:
Basic Attributes
Value:
ClassTypeFirst ReleasedLast UpdatedChange ReasonPanel Type
PANEL.PHENXClinicalVersion 2.36Version 2.66Updated the PhenX ID from "PhenX." to "PX" in Survey Question Source field to align with the variable identifier used in the PhenX Toolkit.; Added the PhenX protocol ID to the Component to clearly define the protocol version for which this panel is based upon.Panel

Identifiers:

Source:
NLM
Id:
71gB0z6nsl
Version:
1.0
Source:
PhenX
Id:
211101
Version:
Source:
LOINC
Id:
63032-7
Version:
2.69