Ethnicity

General Details:

Name:
Ethnicity
Steward:
PhenX
Definition:
Question asking the respondent to identify whether he or she is of Hispanic, Latino, or Spanish origin. The U.S. Office of Management and Budget (OMB) standards for the classification of federal data on race and ethnicity state that "race and ethnicity may be thought of in terms of social and cultural characteristics as well as ancestry."
Registration Status:
Retired

Designations:

Designation:
Ethnicity
Tags:

Designations:

Definition:
Question asking the respondent to identify whether he or she is of Hispanic, Latino, or Spanish origin. The U.S. Office of Management and Budget (OMB) standards for the classification of federal data on race and ethnicity state that "race and ethnicity may be thought of in terms of social and cultural characteristics as well as ancestry."
Tags:
Definition:
The interviewer asks the respondent if he or she considers himself or herself to be Hispanic, Latino or Spanish and, if so, asks an additional question about his or her specific Hispanic origin is asked. One or more Hispanic origin categories may be selected.
Tags:

Reference Documents:

ID:
Title:
URI:
Provider Org:
Language Code:
en-us
Document:
Centers for Disease Control and Prevention. (2000). Race and Ethnicity Code Set, Version 1.0.
ID:
Title:
URI:
Provider Org:
Language Code:
en-us
Document:
Office of Management and Budget. Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity. Federal Register Notice (10/30/97, Vol. 62, No. 210).

Properties:

Key:
Derived Variables
Value:
None
Key:
Equipment Needs
Value:
While the source instrument was developed to be administered by computer, the PhenX Working Group acknowledges these questions can be administered in a noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.
Key:
Keywords
Value:
Demographics, ancestry, Hispanic, Latino, population stratification, Centers for Disease Control and Prevention, CDC, National Health and Nutrition Examination Survey, NHANES
Key:
Language
Value:
English, Spanish
Key:
Life Stage
Value:
Infant, Toddler, Child, Adolescent, Adult, Senior, Pregnancy
Key:
Mode Of Administration
Value:
Interviewer-administered questionnaire
Key:
Participants
Value:
An individual aged 18 years or older. May be asked of children via a proxy.
Key:
Personnel And Training Required
Value:
The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.* There are multiple modes to administer this question (e.g., paper-and-pencil and computer-assisted interviews).
Key:
Process And Review
Value:
The Expert Review Panel #2 (ERP 2) reviewed the measures in the Demographics, Social Environments, and Environmental Exposures domains.Guidance from ERP 2 includes:• Updated protocol• New Data DictionaryBack-compatible: there are changes to the Data Dictionary, previous version of the Data Dictionary and Variable mapping in Toolkit archive (link)
Key:
Protocol
Value:
1. Do you consider yourself to be Hispanic, Latino, or of Spanish origin? READ IF NECESSARY: Where do your ancestors come from? Puerto Rican Cuban/Cuban American Dominican Republic Mexican/Mexican American Central/South American Other Latin American Other Hispanic or Latino 1[ ]YES [ask follow-up question] 2[ ]NO 7[ ]REFUSED 9[ ]DON’T KNOW HELP SCREEN: SPANISH, HISPANIC OR LATINO PEOPLE MAY BE OF ANY RACE. LISTED BELOW ARE HISPANIC OR LATINO CATEGORIES/COUNTRIES. MEXICAN PUERTO RICAN CUBAN DOMINICAN REPUBLIC CENTRAL AMERICAN: COSTA RICAN GUATEMALAN HONDURAN NICARAGUAN PANAMANIAN SALVADORAN OTHER CENTRAL AMERICAN SOUTH AMERICAN: ARGENTINIAN BOLIVIAN CHILEAN COLUMBIAN ECUADORIAN PARAGUAYAN PERUVIAN URUGUAYAN VENEZUELAN OTHER SOUTH AMERICAN OTHER HISPANIC OR LATINO: SPANIARD SPANISH SPANISH AMERICAN 2. Please give me the number of the group that represents your Hispanic/Latino or Spanish origin or ancestry. Please select 1 or more of these categories. PROBE: Where do your ancestors come from? 10[ ]MEXICAN 11[ ]PUERTO RICAN 12[ ]CUBAN 13[ ]DOMINICAN REPUBLIC CENTRAL AMERICAN: 14[ ]COSTA RICAN 15[ ]GUATEMALAN 16[ ]HONDURAN 17[ ]NICARAGUAN 18[ ]PANAMANIAN 19[ ]SALVADORAN 20[ ]OTHER CENTRAL AMERICAN SOUTH AMERICAN: 21[ ]ARGENTINEAN 22[ ]BOLIVIAN 23[ ]CHILEAN 24[ ]COLOMBIAN 25[ ]ECUADORIAN 26[ ]PARAGUAYAN 27[ ]PERUVIAN 28[ ]URUGUAYAN 29[ ]VENEZUELAN 30[ ]OTHER SOUTH AMERICAN OTHER HISPANIC OR LATINO: 31[ ]FILIPINO 32[ ]SPANIARD 33[ ]SPANISH 34[ ]SPANISH AMERICAN 35[ ]HISPANO/HISPANA 36[ ]HISPANIC/LATINO 40[ ]OTHER HISPANIC/LATINO (SPECIFY) 41[ ]CHICANO 77[ ]REFUSED 99[ ]DON’T KNOW
Key:
Protocol Name From Source
Value:
National Health and Nutrition Examination Survey (NHANES), 2013-2014, Demographics Module.
Key:
Purpose
Value:
Ethnicity is used to stratify study populations and to associate those populations with physical, geographic, biological, social, and cultural characteristics (e.g., Dominican). Ethnicity is a social and epidemiological factor, and individuals of some ethnicity are at greater risk for disease. By capturing the ethnicity of respondents, the researcher will be able to identify those who are or are not of Hispanic origin and will be able to stratify the study population accordingly.
Key:
Requirements
Value:
Requirement CategoryRequired
Major equipmentNo
Specialized trainingNo
Specialized requirements for biospecimen collectionNo
Average time of greater than 15 minutes in an unaffected individualNo
Key:
Selection Rationale
Value:
The question meets the Office of Management and Budget (OMB) standards for capturing data on ethnicity. An important variable for population stratification distinguishes those who self-identify as Hispanic/Latino. Vetted against other ethnicity questions, the National Health and Nutrition Examination Survey (NHANES) question was selected because it met OMB standards, was used on a major U.S. health study, and provides additional Hispanic/Latino categories.
Key:
Source
Value:
National Center for Health Statistics. (N.d.). National Health and Nutrition Examination Survey (NHANES), 2013–2014, Demographics Module. Question numbers DMQ.241 and DMQ.253
Key:
Standards
Value:
SourceIDNameStandard
CDE Browser2200284Centers for Disease Control and Prevention Ethnicity Unique Identifier CodesCommon Data Elements (CDE)
LOINC62299-3PhenX - ethnicity protocolLogical Observation Identifiers Names and Codes (LOINC)

Identifiers:

Source:
NLM
Id:
mJQYD354Q
Version:
2.2
Source:
PhenX
Id:
10502
Version:
Source:
LOINC
Id:
62299-3
Version:
2.67
Source:
NINDS
Id:
F2857
Version: