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  • Is your baby currently in any other muscular dystrophy registry?
  • If other, please specify
  • Treatment (RxNorm)
  • Name of drug/trial:
  • Participant Current Trial Participation
  • Participant Future Trial Participation
  • Participant Previous Trial Participation
  • Evaluation date:
  • Age at this evaluation: (months)
  • Name of the Evaluator/Therapist:
  • Gross Motor raw score:
  • Gross Motor scaled score:
  • Gross Motor developmental age equivalent:
  • Fine Motor raw score:
  • Fine Motor scaled score:
  • Fine Motor developmental age equivalent:
  • Receptive Communication raw score:
  • Receptive Communication scaled score:
  • Receptive Communication developmental age equivalent:
  • Expressive Communication raw score:
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